One in 400 families in the entire world are affected with CADASIL. As I write this, I can't help but question...why MY family? Isn't it someone else's turn? Not that I want to push my struggles onto others...but, really GOD...why MY family?
...and then I think about a close personal friend, whose son was diagnosed two years ago with stage four cancer. They have been through more pain, more tough decisions, more tests, more battles to fight, than anyone I know. They have fought these battles with tremendous grace, love, and determination.
When I first met my friend, she was a first grade teacher at a local elementary school in Highlands Ranch. I was a para-professional who often worked in her classroom. I knew, instantly, that I wanted to learn how to teach from her. She was bubbly, super creative, respectful to all students and staff, and she consistently displayed the values I share about education. Little did I know, that I would not learn about teaching from her. But I would learn (and will continue to learn) much, much more.
Cadasil is now is part of my life. Just like my diagnosis with type 1 diabetes 21 years ago - It is what it is - and it will become whatever you allow it to become. Cadasil is here and it is not going anywhere. But neither am I.
Jo~ You are amazing. I thought that the first time I met you. You were so welcoming to a bunch of strange girls and so cute and fun, and I could go on!
ReplyDeleteYou and your mom share a special bond that I don't think many people share.
Thank you for being a strength to me! I can't wait to hear and read about your adventures!